Friday, February 7, 2014

Become a friend of Rare Disease Day 2014!‏

Dear colleagues, 

If your organisation is not yet a Friend of Rare Disease Day, please do become one. Join us and hundreds of other organisations in this huge international awareness campaign.
Let's Join Together for Better Care! It's easy - just follow the instructions below. 
Best Regards,
Raquel Castro

Become a friend of Rare Disease Day!


This is an easy way for you and your organisation to share what you will do this year for Rare Disease Day!

"Friends of Rare Disease Day“ has been created to give visibility to those who want to do something to create awareness for rare diseases. Patient organisations, health professionals, researchers, drug developers and public health authorities having an interest in rare diseases are invited to join this year's campaign.

Being a “Friend” requires limited commitment to the Rare Disease Day campaign and acknowledges the fact that not everyone can give the same level of time and effort.  We ask your participation by:

·      Posting the Rare Disease Day logo on your website
·      Linking your website to

Friends are also strongly encouraged to organise or participate in awareness-raising activities and to relay EURORDIS press releases about Rare Disease Day and/or their country’s National Alliance press releases to their media contacts.

The Rare Disease Day website displays the list of people and organisations who have signed up to be a “Friend of Rare Disease Day.”

Click here to register as Friend. It takes only a minute!

Join us now!

February 28th, 2014 is Rare Disease Day!

Rare Disease Day is an annual awareness-raising event coordinated by EURORDIS at the international level and National Alliances of Patient Organisations at the National level.

This year’s theme is Care and the slogan is “Join Together for Better Care”

Find out all about this year’s campaign on

Don’t forget you can also:
Join Rare Disease Day Facebook Group
Follow Rare Disease Day on Twitter
Questions?  Suggestions?  Drop us an email at

Get involved – this day is the Day to put rare diseases in the spotlight!

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